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Ann's
Corner
Be Your Child's
Best Advocate--Advice, Ideas and Suggestions
By Ann Martinelli
Click
here to read Ann's advice on "Back to School
Time"!
Meet Ann...
Ann Martinelli has been a
family advocate and support specialist at FRA since 1992. She has also been a
service provider within FRA’s Early Intervention Program since 1998. Ann and her
husband are parents to three grown children. Their youngest child, Joe, is
twenty one years old and was diagnosed with multiple disabilities when he was
six months old. Ann has successfully navigated the special education system and
many state-wide agencies for people with disabilities. She has conducted
Transition To Pre-School workshops for ten years and has provided one-to-one
assistance to families in transition and to those whose child is currently
receiving special education services. As a family advocate and support
specialist Ann believes in empowering the family to be the best advocate for
their child which will enable them to work as a member of the Child Study Team.
Federal and state law provide parents with specific rights, but responsibilities
are also part of the parental role. Families who are knowledgeable about the
federal and state special education laws will be able to successfully advocate
for their child. Ann is available to provide assistance by telephone and by
individual sessions with the family.
FAQ’s...
Q--Once I sign an IEP do I have to wait until the annual review to make changes to
it?
A--No, although an IEP is a legally binding document, changes can be made at any
time. While the law requires a review of a child’s IEP at least once a year,
parents and other members of the Child Study Team (CST) may request an IEP
meeting (in writing!) at any time during the year to address concerns.
Q--I do not agree with the evaluation (ex. speech, reading, psychological, etc.) my
district completed for my child. What recourse do I have?
A--When parents disagree with a district evaluation, they may request (in writing)
an independent evaluation to be provided at the district’s expense. While this
does not mean the parent will be able to choose the evaluator, it does mean it
will be an independent party.
Q--My child will be turning three soon and entering the public school system. I
have heard from other parents that my district “gives families a hard time.”
Should I bring an advocate or attorney to my IEP meeting?
A--My advice is “no.” While you may, at some point in the future, need the advice
of an advocate or attorney, bringing one to your first IEP meeting may be
considered adversarial by other members of the CST. Remember, your relationship
with the CST is like any other relationship; it will require listening,
questioning, reflection and respect. Respect is crucial and can be undermined by
harsh words and demands. Emotions can be hard to control when a parent is
discussing their child but when you listen to the other members of the team, you
learn. You may vehemently disagree, but reflecting and talking about your
challenges with others (family, friends, etc.) after the meeting may put your
thoughts into perspective and enable you to come back to the table better
prepared. Remember, as long as you live in the same town and your child is
receiving special education services, you will have to work with the other
members of the CST. This work carries with it the responsibility to be
knowledgeable about your child’s disability, and their individual strengths and
weaknesses.
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