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Ann's Corner--Advice on how to advocate for your child
Links to Web Sites and other Resource Information

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~Photo Gallery

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Public Transportation Info

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For Siblings Only and Sibling Forum
 

 

Resources

Advocacy (Education)

Wrightslaw--www.wrightslaw.com

National Dissemination Center for Children with Disabilities--www.nichcy.org

Harbor House Law Press, Inc.--www.harborhouselaw.com

NJ Protection and Advocacy, Inc.--www.njpanda.org

State of NJ, Department of Education--www.state.nj.us/education

Advocacy (General)

Developmental Disabilities Council--www.njddc.org

Statewide Parent Advocacy Network (SPAN)--www.spannj.org

TASH--www.tash.org

Angelman syndrome

Angelman Syndrome Foundation, Inc.--www.angelman.org

Asperger syndrome

Online Asperger syndrome Information and Support--www.udel.edu/bkirby/asperger

Assistive Devices (like walking aids, wheelchairs, etc.)

Assistive Technology

TECHConnection at FRA--www.techconnection.org

Autism and PDD

Autism Society of America--www.autism-society.org 

Parents of Autistic Children--www.poac.net

Autism Web--www.autismweb.com

AutismInfo.com--www.autisminfo.com

Center for the Study of Autism--www.autism.org

Unlocking Autism--www.unlockingautism.org

Verbal Behavior Network--www.verbalhehaviornetwork.com

Autism Network for Dietary Intervention--www.autismndi.com

Cerebral Palsy

United Cerebral Palsy--www.ucp.org

Chromosome Disorders

Chromosome Deletion Outreach, Inc.--www.chromodisorder.org

National Organization for Rare Disorders--www.rarediseases.org

Developmental Delay

Developmental Delay Resources--www.devdelay.org

Down syndrome

National Association for Down Syndrome--www.nads.org

National Down Syndrome Society--www.ndss.org

Down Syndrome Health Issues--www.ds-health.com

Down Syndrome: For New Parents--www.downsyn.com

National Down Syndrome Congress--www.ndsccenter.org

Down Syndrome Quarterly--www.denison.edu/dsq

Making Plans--A Financial Guide for People with Down Syndrome and Their Families--A print publication available from NDSS; (click here.)

Chesapeake Down Syndrome Parent Group, Inc.--www.cdspg.org

FRA Down Syndrome News--A twice yearly publication of Family Resource Associates, Inc.

Early Intervention

NJ Early Intervention System--www.njeis.org

State of NJ, Division of Family Health Services Early Intervention System--www.state.nj.us/health/fhs./eiphome.htm

Family Support

The Fathers Network--www.fathersnetwork.org

Gluten and Casein Free Diets

Gluten and Casein Free Diet--www.gfcfdiet.com

Dana's View from the Inside--www.danasview.net

www.groups.yahoo.com/group/GFCFKids

Health Issues (General)

Kids Health--www.kidshealth.org

Hydrocephalus

Hydrocephalus Association--www.hydroassoc.org

Hydrocephalus Foundation, Inc.--www.hydrocephalus.org

Infant Torticollis

National Infant Torticollis Association--www.infant-torticollis.org

Legal Issues (e.g. wills, guardianship)

Pervasive Development Disorder--see Autism and PDD

Recreation

Challenged Youth Sports--http://eteamz.active.com/challengedyouthsports/index.cfm

Travel info for those with disabilities--www.gimponthego.com

Society for Accessible Travel & Hospitality--www.sath.org

Access-Able Travel Source--http://access-able.com

US Transportation Department--Toll-Free Hotline for air travelers with disabilities seeking information and assistance: 800-778-4838 (Voice), 800-455-9880 (TTY)

Kids' Camps--www.kidscamps.com

The Guided Tour, Inc.--www.guidedtour.com

Religious Services

Lutheran Church of the Reformation--Rejoicing Spirits: A Worship Service designed specifically for the developmentally disabled and their caregivers. All are welcome to attend regardless of religious affiliation. The church is located at 992 Broadway in West Long Branch. Call 732-229-9180 for more information.

Rett syndrome

International Rett Syndrome Association--www.rettsyndrome.org

Sibling Support

For Siblings Only--A newsletter from FRA for 4-10 year old siblings.

Sibling Forum--A newsletter from FRA for siblings age 10 and older.

Spina Bifida

Spina Bifida Association--www.sbaa.org